Tuesday, April 27, 2010

The Password for Celiac Testing is Diarrhea!

A funny thing happened today at the doctor's office.  Enjoy! I seriously wish sometimes that my life was being recorded like a reality show. Moments like the one in the hallway of my doctor's office today are just good old fashioned entertainment!


Rylee said...

Thanks so much for posting this! Sharing this part of your story is so important that you've triggered the first-ever thoughts in my head of doing my own video blog. By the way, I'm pretty sure we met in passing at Matt & Angela's wedding last year. (In addition to enjoying the festivities, I was helping organize the volunteer crew.)

I've been raw for a year and eliminated gluten, dairy, soy, and yeast from my diet two years ago after food sensitivity testing (Elisa IgG) came back with those (and other) reactions. My doctor at the time, who is Celiac herself, considered me a classic case of celiac disease. While the standard classic celiac bloodwork panel came back as negative for me at the time, this is not uncommon. A negative celiac test result does not guarantee one is in the clear! We later had me do another type of test through EnteroLab, which came back with confirmation of my "Gluten Intolerance" and recommended I follow a Strict gluten-free diet. This article was a key read for me in hte first year: http://www.enterolab.com/StaticPages/EarlyDiagnosis.aspx

The true test of celiac disease and gluten intollerance is how your body responds to a sustained strict gluten-free diet. For me, in addition to my lab tests, I have seen how my body reacts and know that gluten (even the most miniscule amount) is a poison to my body. After accidental gluten exposure recently, I realized that I had to be even more careful than I already was. This issue is very close to my heart and occupying much of my brain lately.

I've realized that the (accidental) gluten can affect me in a variety of odd ways, with delayed onset, varying duration of symptoms, and varying severity. I've also realized that for every time I've noticed a reaction, there could be many other times that I overlooked it and was still doing damage to my body. It is also playing a role in my other health challenges. Autoimmune reactions are messy business! It's so vital to learn how to best love and care for our bodies. :)

I'm so glad to see you publically blogging about even the possibility of celiac disease. I've been through this and want to be able to help you in any way I can. I've been navigating the gluten-free life for two years now and am active in the raw community too. :)

I just read this set of facts about Celiac disease that I think you'll like to check ou: http://blog.glutenfreeworks.com/2010/04/01/15-celiac-disease-facts-everyone-should-know/#more-1564

Much love,